“Malattie Rare al Centro” is a medical-scientific information hub with an operational base in Parma, entirely aimed at the analysis and dissemination of highly specialized content relating to five rare diseases (Alpha Mannosidosis, Nephropathic Cystinosis, Fabry Disease, Leber Hereditary Optic Neuropathy and Thalassemia).
The support action of Gruppo WISE has acted for a complete review of tools, methods and communication channels. A strategic accompaniment aimed at reaffirming its decisive role as a connector between the scientific community and the patient.
A link that translates into the need for the two spheres to approach each other with two fundamental objectives: to accompany patients and families on the one hand, and, on the other, to conciliate conscious and decisive paths in the direction of preventive diagnosis.